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For members only – Meeting July 23, 2024

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To mark World Sjögren’s Syndrome Day on July 23, the birthday of Dr Henrik Sjögren who discovered Sjögren’s syndrome, we are offering members a virtual meeting on the Zoom platform.

The aim of this meeting is to introduce you to reliable and relevant resources on Sjögren’s syndrome, which are sure to help you better understand this rare and still orphan disease, little-known by the general public and healthcare professionals alike.

  • Tuesday July 23 at 12:00 via Zoom
  • Tuesday, July 23 at 6:00 p.m. via Zoom
  • Tuesday, July 30 at 1:00 p.m. via Zoom
  • Register online

Conference June 4, 2025 – “Better understanding for better breathing!

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Date modified – Wednesday, June 4, 2025 at 3:00 p.m.

Virtual conference – Topic: “Better understanding for better breathing! Overview of the pathophysiology of obstructive and restrictive lung diseases (interstitial diseases, fibrosis, etc.). Lecture and questions.

Guest speaker: Coralie Léveillée, medical extern, Université de Sherbrooke.

If you would like to attend this conference, please register online or leave your contact details at the following e-mail address: sjogrenquebec@gmail.com. You will receive the Zoom link a few days before the event. If you have any questions, please let us know when you register.

your name
your e-mail address
your phone number
membership number
date(s) of meeting

Wednesday June 4 at 3:00 p.m. via Zoom
Click here to register :  To register

We look forward to meeting you.

Lise St-André, volunteer

Volunteer Week 2024

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Volunteer Week 2024, which runs from April 14 to 20, is an opportunity to highlight the commitment of volunteers to the Sjögren’s Syndrome Association.

As active participants, our volunteers contribute to the promotion, development, support and outreach of our organization and its mission.

“Volunteering means joining a movement where it’s good to give and receive, whatever the size or nature of your contribution. When it comes to the heart, there are no small gestures. We can all contribute in our own way, volunteering in unison.

FCABQ and Réseau de l’action bénévole du Québec.

THANK YOU TO ALL OUR VOLUNTEERS!

2024-04-12

New on the website

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On the site, you’ll find reliable information on the disease, a list of relevant resources on Sjögren’s syndrome, tips on how to modify your environment and lifestyle to improve the impact of symptoms on a daily basis, news on current research and information on the association.

For members only – Group meeting

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Presentation of rheumatologist Dr. Shen’s lecture in rerun: 
“Understanding Sjogren’s Syndrome”  
When: Tuesday, June 11, 2024
Time: 6:30 p.m. to 7:20 p.m.
Followed by a discussion period
Subjets include:
  • What is Sjögren’s Syndrome?
  • How is it diagnosed?
  • What treatments are available?
  • What complications need to be monitored?
  • What follow-up care is available?
  • What diseases may be associated with Sjögren’s?

If you would like to attend one of the meetings offered, please register online or leave your contact details at the following email address: sjogrenquebec@gmail.com. You will receive the Zoom link a few days before the meeting, and a reminder the day before. If you have any questions, please let us know when you register.

  • your name
  • your e-mail address
  • membership number
  • phone number

We look forward to hearing from you,

Lise St-André, volunteer and office manager
2024-06-06

Board of Directors 2024-2025

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On Saturday, May 4, 2024, the Annual General Meeting of the Sjögren’s Syndrome Association was held by Zoom videoconference. Following nominations, all positions on the Board of Directors were filled. Officers were appointed at the Board meeting following the AGM.

PRESIDENT
Mrs Francine Laguë nº987
VICE-PRESIDENT
Mrs Pierrette Roy nº1000
SECRETARY
Mrs Guylaine Alarie nº1048
TREASURER
Mrs Claudette Hubert nº988

DIRECTORS
Mrs Ginette Fréchette nº1036
Mr. Michel Bourassa nº 969
Mrs Lucie Poulin nº 997

We would like to thank the members of the Board of Directors for their invaluable commitment to the mission of the Sjögren’s Syndrome Association.

2024-05-08