Privacy Policy

This privacy policy describes how your personal information is collected and used.

The Sjögren's Syndrome Association (hereinafter referred to as "the Association", Sjögren Quebec, "we", "us", or "our") is committed to respecting the privacy of our members, volunteers, customers, and anyone else who visits our website or interacts with us. The purpose of this Privacy Policy is to inform you about how we collect, use, disclose and protect your personal information in accordance with Quebec's Act 25 respecting the protection of personal information in the private sector.

This Policy on the Protection of Personal Information is intended to help you understand our personal information collection, use, disclosure and retention practices. By providing us with personal information through our website, by completing an event participation form, by email, in person or by telephone, you agree to its processing in accordance with this Privacy Policy, and you authorize SJOGREN'S SYNDROME ASSOCIATION its third parties and service providers to process your personal information for the purposes set out below.

This Policy does not apply to third-party websites that may be accessed through links on this website, and SJOGREN'S SYNDROME ASSOCIATION is not responsible in any way for such third-party websites. If you follow a link to a third-party website, that site will have its own privacy policies that you should review carefully before submitting any personal information.

  1. Collection of Personal Information

We may collect various types of personal information, including, but not limited to, the following:

  • Last name, first name, postal address, e-mail address, telephone number.
  • Financial information for payment processing (if applicable).
  • Login and usage information when you visit our website, including browsing data and cookies (please see our Cookie Policy for more information).

We collect this information in a variety of ways, including when you provide it to us directly, when you browse our website, or when we lawfully obtain it from third-party sources.

  1. Use of Personal Information

We use your personal information with your consent for the following purposes:

  • To manage and maintain our association.
  • To communicate with you, to respond to the request we have received from you, including to inform you about our activities, events and news.
  • To process payments and donations (where applicable).
  • To personalize and enhance your experience on our website.
  • To comply with applicable laws and regulations.
  1. Disclosure of Personal Information

We will only disclose your personal information with your consent or when required by law. We may share your information with our third-party service providers, but only to the extent necessary to provide the services we have engaged.

  1. Security of Personal Information

We implement appropriate security measures to protect your personal information from unauthorized access, use, disclosure or destruction.

  1. Accessing and Updating Personal Information

Under certain circumstances and in accordance with applicable data protection laws, an individual has the following rights:

  • Access: the right to ask whether we process information and, if so, to request access to personal information. Subject to applicable law and, where applicable, the payment of a fee, an individual may thus obtain a copy of the personal information we hold and certain other information about them;
  • Accuracy: we are required to take reasonable steps to ensure that personal information we hold is accurate, complete, non-misleading and up-to-date;
  • Correction: the right to request rectification of any incomplete or inaccurate personal information held by us;

To exercise any of these rights, please contact us as indicated in the How to Contact Us section.

  1. How to contact us

If you have any questions, concerns or requests regarding this Privacy Policy or our privacy practices, please contact our Privacy Officer at the following coordinates:

Sjögren Québec (Sjögren's Syndrome Association)
Ms. Lise St-André
706 rue Laurier, Bureau 100A
Beloeil, Québec J3G 4J6
Telephone : 514-934-3666 ; Toll free : 877-934-3666
sjogrenquebec@gmail.com

  1. Changes to this Policy

We may update this Privacy Policy from time to time to reflect, for example, changes in our practices or for other operational, legal or regulatory reasons. Any changes will be posted on our website with the date of the last update. Please check this policy regularly for updates.

This policy was last updated on July 12, 2024.