Welcome to the Sjögren's Syndrome Association's “Resources” page, where you'll find a collection of documents that have been selected to help people affected by Sjögren's syndrome better understand their disease, find relevant information on the symptoms and manifestations of Sjögren's disease, treatments available in Quebec, as well as advances in research in the United States, particularly in France, and topics of interest to patients.

We know that Sjögren's disease can be difficult to live with on a daily basis, and we hope that you will find the information and reassurance to help you on your healthcare journey.

Useful links

1. Association Française du Gougerot-Sjögren
2. Sjogren's Syndrome Foundation
3. Les 100 questions sur le Sjögren
4. Association Romande du Syndrome de Sjögren
5. La Société de l'Arthrite
6. Le JointHealth™ express
7. L'accès priorisé aux services spécialisés au Québec (APSS)
8. Association des médecins rhumatologues du Québec
9. Sjögren Europe
10. The necessity project

1. Sjögren's syndrome associated with scleroderma by Dr. Hao Cheng Shen, MD Resident in adult rheumatology, Centre hospitalier de l'Université de Montréal (February 2024). In this article, we will discuss what Sjögren’s syndrome is, and how it is diagnosed, treated, and monitored. Learn more... 

1. Le Gougerot Sjögren - Les 100 questions sur le Sjögren, pour mieux gérer la maladie, Hatron PY, Mariette X, Amoura, Hachulla E, Le Guern V, Sibilia J. En savoir plus...

1. Sjögren's Syndrome Symptoms - Schema - Learn more...
2. Sjögren's Syndrome, ways it may affect the body - Schema - Learn more...
3. Systemic manifestations of primary Sjögren's syndrome - Schema - Learn more...

1. Maladie (ou syndrome) de Sjögren- Protocole national de diagnostic et de soins (PNDS) a été rédigé sous la coordination du Pr Valérie Devauchelle et du Pr Xavier Mariette, France (mars 2022 ). L’objectif de ce protocole national de diagnostic et de soins (PNDS) est d’expliquer aux professionnels concernés la prise en charge diagnostique et thérapeutique optimale actuelle et le parcours de soins d’un patient atteint de Syndrome de Sjögren. Il a pour but d’optimiser et d’harmoniser la prise en charge et le suivi de la maladie rare sur l’ensemble du territoire. En savoir plus...

1. Document 2020 France - The necessity project  (New Clinic Endpoints in primary Sjögren's Syndrome: an International Trial based on stratifYing patients - Project coordinator: Xavier Mariette - Institut National de la Santé et de la Recherche Médicale. The project aims to identify and validate new endpoints that could be used in clinical trials to determine whether or not a new drug works in the treatment of primary Sjögren's syndrome.  Learn more...

1. Webinaire (2021) RheumNow - How can we help our patients with Sjogren’s? by Dr. Janet Pope.   Learn more...

1. AOQ - Fee summary guide for 2024 - Association des optométristes du Québec.  Learn more...

2024-07-16