{"id":141,"date":"2016-01-25T15:52:07","date_gmt":"2016-01-25T20:52:07","guid":{"rendered":"http:\/\/wpperso.fpdevel.ca\/en\/?page_id=141"},"modified":"2025-08-01T15:46:50","modified_gmt":"2025-08-01T19:46:50","slug":"ressources","status":"publish","type":"page","link":"https:\/\/sjogren.ca\/en\/ressources\/","title":{"rendered":"Ressources"},"content":{"rendered":"\n\n\t<p>Welcome to the Sj\u00f6gren&#8217;s Syndrome Association&#8217;s &#8220;Resources&#8221; page, where you&#8217;ll find a collection of documents that have been selected to help people affected by Sj\u00f6gren&#8217;s syndrome better understand their disease, find relevant information on the symptoms and manifestations of Sj\u00f6gren&#8217;s disease, treatments available in Quebec, as well as advances in research in the United States, particularly in France, and topics of interest to patients.<\/p>\n<p>We know that Sj\u00f6gren&#8217;s disease can be difficult to live with on a daily basis, and we hope that you will find the information and reassurance to help you on your healthcare journey.<\/p>\n<hr \/>\n<h2>Useful links<\/h2>\n<ol>\n<li><a href=\"https:\/\/www.sjogrens.org\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Sjogren&#8217;s Syndrome Foundation<\/strong><\/a><\/li>\n<li><a href=\"https:\/\/www.afgs-syndromes-secs.org\/\" target=\"_blank\" rel=\"noopener noreferrer\"><strong>Association Fran\u00e7aise du Gougerot-Sj\u00f6gren<\/strong><\/a><\/li>\n<li><a href=\"https:\/\/www.rhumatismes.net\/index.php?p=13&amp;id_bro=23&amp;rub=les100q\" target=\"_blank\" rel=\"noopener\"><strong>Les 100 questions sur le Sj\u00f6gren<\/strong><\/a><\/li>\n<li><strong><a href=\"https:\/\/arthritis.ca\/about-arthritis\/arthritis-types-(a-z)\/types\/sjogren-syndrome\">Arthritis Society Canada- Sj\u00f6gren&#8217;s Syndrome<\/a><\/strong><\/li>\n<li><strong><a href=\"https:\/\/jointhealth.org\/aboutarthritis-diseasespotlight.cfm?id=11&amp;locale=en-CA\">JoinHealth express &#8211; Sj\u00f6gren&#8217;s Syndrome<\/a><\/strong><\/li>\n<li><a href=\"http:\/\/www.msss.gouv.qc.ca\/professionnels\/soins-et-services\/l-acces-priorise-aux-services-specialises\/\"><strong>L&#8217;acc\u00e8s prioris\u00e9 aux services sp\u00e9cialis\u00e9s au Qu\u00e9bec<\/strong>\u00a0(<strong>APSS)<\/strong><\/a><\/li>\n<li><a href=\"http:\/\/www.rhumatologie.org\/\"><strong>Association des m\u00e9decins rhumatologues du Qu\u00e9bec<\/strong><\/a><\/li>\n<li><strong><a href=\"https:\/\/www.sjogreneurope.org\/\">Sj\u00f6gren Europe<\/a><\/strong><\/li>\n<li><strong><a href=\"https:\/\/www.necessity-h2020.eu\/\">The necessity project<\/a><\/strong><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li><em><strong>Sj\u00f6gren&#8217;s Syndrome associated with scleroderma<\/strong><\/em> by Dr. Hao Cheng Shen, MD Resident in adult rheumatology, Centre hospitalier de l&#8217;Universit\u00e9 de Montr\u00e9al (February 2024). In this article, we will discuss what Sj\u00f6gren&#8217;s syndrome is, and how it is diagnosed, treated, and monitored. <strong><a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/06\/VF_Fiche_SjogrenSyndrome_Anglais_WEB.pdf\" target=\"_blank\" rel=\"noopener\">Learn more&#8230;<\/a>\u00a0<\/strong><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li><em><strong>Le Gougerot Sjo\u0308gren &#8211; Les 100 questions sur le Sj\u00f6gren, pour mieux g\u00e9rer la maladie<\/strong>,\u00a0<\/em>Hatron PY, Mariette X, Amoura, Hachulla E, Le Guern V, Sibilia J.\u00a0<a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/06\/SGS_100Q_version-en-ligne.pdf\" target=\"_blank\" rel=\"noopener\"><strong>En savoir plus&#8230;<\/strong><\/a><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li><em><strong>Sj\u00f6gren&#8217;s Syndrome Symptoms <\/strong><\/em>&#8211; Schema &#8211; <strong><a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/06\/LES-SYMPTOMES-DU-SYNDROME-DE-SJOGREN-SERVIER-ANGLAIS.png\" target=\"_blank\" rel=\"noopener\">Learn more&#8230;<\/a><\/strong><\/li>\n<li><em><strong>Sj\u00f6gren&#8217;s Syndrome, ways it may affect the body <\/strong><\/em>&#8211; Schema &#8211; <strong><a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/06\/AFFICHE-No1-SJOGREN-anglais.pdf\" target=\"_blank\" rel=\"noopener\">Learn more&#8230;<\/a><\/strong><\/li>\n<li><em><strong>Systemic manifestations of primary Sj\u00f6gren&#8217;s syndrome\u00a0<\/strong><\/em>&#8211; Schema &#8211; <a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/07\/Manifestions-systemiques-du-Sjogren.png\" target=\"_blank\" rel=\"noopener\"><strong>Learn more&#8230;<\/strong><\/a><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li><em><strong>Maladie (ou syndrome) de Sj\u00f6gren<\/strong><\/em>&#8211; Protocole national de diagnostic et de soins (PNDS) a \u00e9t\u00e9 r\u00e9dig\u00e9 sous la coordination du Pr Val\u00e9rie Devauchelle et du Pr Xavier Mariette, France (mars 2022 ).\u00a0L&#8217;objectif de ce protocole national de diagnostic et de soins (PNDS) est d&#8217;expliquer aux professionnels concern\u00e9s la prise en charge diagnostique et th\u00e9rapeutique optimale actuelle et le parcours de soins d&#8217;un patient atteint de Syndrome de Sj\u00f6gren. Il a pour but d&#8217;optimiser et d&#8217;harmoniser la prise en charge et le suivi de la maladie rare sur l&#8217;ensemble du territoire.\u00a0<a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/06\/pnds_sjogren_mars_2022.pdf\" target=\"_blank\" rel=\"noopener\"><strong>En savoir plus&#8230;<\/strong><\/a><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li>Document 2020 France &#8211; <strong><a href=\"https:\/\/www.necessity-h2020.eu\/\"><em>The necessity project<\/em><\/a> \u00a0<\/strong>(<strong>N<\/strong>ew\u00a0<strong>C<\/strong>linic\u00a0<strong>E<\/strong>ndpoints in primary <strong>S<\/strong>j\u00f6gren&#8217;s <strong>S<\/strong>yndrome: an <strong>I<\/strong>nternational\u00a0<strong>T<\/strong>rial based on stratif<strong>Y<\/strong>ing patients &#8211; Project coordinator: Xavier Mariette &#8211; Institut National de la Sant\u00e9 et de la Recherche M\u00e9dicale. The project aims to identify and validate new endpoints that could be used in clinical trials to determine whether or not a new drug works in the treatment of primary Sj\u00f6gren&#8217;s syndrome. \u00a0<strong><a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2024\/07\/Layout-1-fr.pdf\" target=\"_blank\" rel=\"noopener\">Learn more&#8230;<\/a><\/strong><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li>Webinaire (2021) RheumNow &#8211; How can we help our patients with Sjogren&#8217;s? by Dr. Janet Pope.\u00a0 \u00a0<a href=\"https:\/\/www.google.com\/search?q=janet+pope+webinaire+sjogren+&amp;sca_esv=d2ced1add3a60223&amp;sca_upv=1&amp;rlz=1C5CHFA_enCA927CA928&amp;sxsrf=ADLYWIJO6AihA7vGCSacnYzTU0FKLG5YFQ%3A1720486260831&amp;ei=dImMZpauMsSz5NoPgraguAo&amp;ved=0ahUKEwiWuKvj3piHAxXEGVkFHQIbCKcQ4dUDCA8&amp;uact=5&amp;oq=janet+pope+webinaire+sjogren+&amp;gs_lp=Egxnd3Mtd2l6LXNlcnAiHWphbmV0IHBvcGUgd2ViaW5haXJlIHNqb2dyZW4gMgUQIRigATIFECEYoAFIuilQughY5SNwAngAkAEAmAF9oAGSBKoBAzIuM7gBA8gBAPgBAfgBApgCBqACnwTCAggQIRigARjDBMICCBAAGIAEGKIEwgIIEAAYogQYiQWYAwCIBgGSBwMzLjOgB_gK&amp;sclient=gws-wiz-serp#fpstate=ive&amp;vld=cid:cce76649,vid:P3MbLlrlVoo,st:0\"><strong>Learn more&#8230;<\/strong><\/a><\/li>\n<\/ol>\n<hr \/>\n<ol>\n<li>Publication of l&#8217;AOQ 2025 &#8211; <em><strong>Fee summary guide for 2025<\/strong><\/em>\u00a0&#8211; Association des optom\u00e9tristes du Qu\u00e9bec.\u00a0 <a href=\"https:\/\/sjogren.ca\/wp-content\/uploads\/2025\/03\/Grilledetarifs2025-EN.pdf\"><strong>Learn more&#8230;<\/strong><\/a><\/li>\n<\/ol>\n<hr \/>\n\n<h5><i>2025-03-03<\/i><\/h5>\n\n","protected":false},"excerpt":{"rendered":"<p>Welcome to the Sj\u00f6gren&#8217;s Syndrome Association&#8217;s &#8220;Resources&#8221; page, where you&#8217;ll find a collection of documents that have been selected to help people affected by Sj\u00f6gren&#8217;s syndrome better understand their disease, find relevant information on the symptoms and manifestations of Sj\u00f6gren&#8217;s disease, treatments available in Quebec, as well as advances in research in the United States, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"template-page-builder.php","meta":{"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"class_list":{"0":"post-141","1":"page","2":"type-page","3":"status-publish","5":"entry"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Ressources - Association du syndrome de Sj\u00f6gren<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sjogren.ca\/en\/ressources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ressources - Association du syndrome de Sj\u00f6gren\" \/>\n<meta property=\"og:description\" content=\"Welcome to the Sj\u00f6gren&#8217;s Syndrome Association&#8217;s &#8220;Resources&#8221; 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